Cairo Workshop

By on April 2, 2013 in Medical Ethics
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People want to be asked for their permission to share their genetic data

By on September 3, 2010 in Research Ethics

Researchers at the Group Health Research Institute and the University of Washington (UW) has published their study in which they discovered that peopled want to be informed and asked for their consent to share their coded, de-identified genetic information in a federal database.  This study, published in the September 2010 Journal of Empirical Research on [...]

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Exploitative Pediatric Research In Developing Countries?

By on August 28, 2010 in Research Ethics

A recent study mapping the outsourcing of pharmaceutical pediatric research in developing countries has raised the concern of exploitation. The study performed by Duke investigators (Globalization of Pediatric Research: Analysis of Clinical Trials Completed for Pediatric Exclusivity) raises the concern that many of these trials are testing drugs that are unlikely to be reasonably available [...]

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Palliative Care Extends Life of Patients with Lung Cancer

By on August 26, 2010 in Medical Ethics

Investigators have found that patients with terminal lung cancer began receiving palliative care immediately at the time of diagnosis  were happier, more mobile,  in less pain as the end-of-life and ALSO:  lived nearly three months longer than those who did not receive palliative care. The study was published in The New England Journal of Medicine [...]

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Obama Administration Seeks Tougher Medical Privacy Law

By on August 18, 2010 in Public Health

At the urging of consumer groups and key members of Congress, the Obama administration is rewriting new rules on medical privacy. The expressed concern is that the current rules do not adequately protect the rights of patients. The rules specify when doctors, hospitals and insurers must tell patients about the improper use or disclosure of [...]

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